Based in the US, we are comprised of a team of dedicated and talented parents, scientists, and professionals focused on the goal of advancing research in the rare disease space. We have developed a cutting-edge organization that has driven the science into clinical trial. Our success is enabling us to grow to further our innovation and commitment to developing new therapies and to making a positive impact for those supporting and those with this rare disorder.
We are currently searching for an experienced professional to join our team as a Marketing Manager (MM). The MM will report directly to the Chief Executive Officer of our non-profit.
This leader in this new role will create audience-centric, innovative and engaging marketing strategies, and oversee and execute the implementation of marketing efforts from inception to launch to support the non-profit’s program and development strategy.
This role will be responsible for furthering – in collaboration with program and development leadership – our marketing strategy and execution, and for implementing a branding approach that differentiates and demonstrates the importance of our organization and its work, supports our efforts around the world, and advances the growth of our organization’s reach and impact.
To be successful, this role will collaborate with our global network to help ensure relevant, complementary and compelling marketing is available to them and their networks.