Marketing Manager

Foundation for Angelman Syndrome Therapeutics

The Foundation for Angelman Syndrome Therapeutics (FAST) is an all voluntary organization of families and professionals dedicated to finding a cure for Angelman syndrome and related disorders through the funding of research, education, and advocacy.

FAST is run by an all-volunteer board of Angelman syndrome (AS) parents and professionals dedicated to finding a cure for AS and related disorders through the funding of an aggressive research agenda. The foundation is committed to assisting individuals living with Angelman syndrome to realize their full potential and quality of life. Our goal is to bring practical treatment into current medical practice as quickly as possible. It is our hope that grants we fund will lead to additional research support from government agencies, other funding sources and organizations around the globe. FAST is served by two boards: the board of directors and the scientific advisory board. Together, we are working hard to bring practical treatment into current medical practice as quickly as possible.

Position Details

Marketing Manager
Southeast Wisconsin
Remote Work in IL or WI, WI

Based in the US, we are comprised of a team of dedicated and talented parents, scientists, and professionals focused on the goal of advancing research in the rare disease space. We have developed a cutting-edge organization that has driven the science into clinical trial. Our success is enabling us to grow to further our innovation and commitment to developing new therapies and to making a positive impact for those supporting and those with this rare disorder.

We are currently searching for an experienced professional to join our team as a Marketing Manager (MM). The MM will report directly to the Chief Executive Officer of our non-profit.

This leader in this new role will create audience-centric, innovative and engaging marketing strategies, and oversee and execute the implementation of marketing efforts from inception to launch to support the non-profit’s program and development strategy.

This role will be responsible for furthering – in collaboration with program and development leadership – our marketing strategy and execution, and for implementing a branding approach that differentiates and demonstrates the importance of our organization and its work, supports our efforts around the world, and advances the growth of our organization’s reach and impact.

To be successful, this role will collaborate with our global network to help ensure relevant, complementary and compelling marketing is available to them and their networks.

As MM, your primary duty will be to develop and implement marketing to advance the organization’s mission and strategy. This work extends across four main pillars:

Strategic Leadership

  • Develop strategy for, oversee, and contribute to all aspects of communication and branding strategy and efforts, including press relations, hard-copy and digital publications, online and social media presence, multimedia presence, and branding initiatives.
  • Provide thoughtful, nuanced counsel on complex communications and branding challenges.
  • Promote our programs and new initiatives, engaging both internal and external stakeholders including current and potential funders.
  • Continuously evaluate the marketplace, highlighting competitive intelligence to identify marketplace trends and shifts for internal stakeholders.
  • Manage the central communications budget.
  • Manage vendors as needed.
  • Manage issues and crisis communications efforts, providing timely and effective talking points and media training for leadership.

Integrated Communications

  • Support / Build out the marketing function and oversee activities of internal and external resources in support of the marketing priorities which may include market research, trade shows, research conferences, as well as patient support services.
  • Engage with all teams inside the organization to establish strategic direction, ensure alignment, develop operating policies and to aid in major project planning.

External Communications

  • Position our organization for strategic earned media coverage; guide and develop a portfolio of owned media and shared media assets.
  • Maintain a visible and effective role as a media liaison and spokesperson.
  • Develop and share best practices in new media technologies and tools; develop metrics and other assessment tools to measure the effectiveness of our communications efforts.
  • Promote our mission and raise our visibility with blogging, social media, and other channels.
  • Develop and maintain strong relationships with stakeholders in the research, regulatory, legal and clinical fields to coordinate strategic efforts.


  • Oversee branding and identity initiatives, based on a sophisticated understanding of marketing strategies and trends that align with our goals and mission.
  • Drive efforts to continue to distinguish and enhance our brand.
  • Write and edit a range of communication materials.

The Marketing Manager will have at least 5-years of relevant experience, including creating and implementing digital across a wide array of platforms, conducting needs analysis and customer-centric feedback processes, and working collaboratively across teams.

  • Bachelor’s Degree required. Advanced degree in related field preferred.
  • Demonstrated results-driven manager with the ability to set clear priorities, delegate, and effectively manage people and processes; keen analytic, organization and problem-solving skills.
  • Ability to work in an ambiguous, rapidly changing environment, and to work remotely.
  • Experience with the creation and manipulation of professional graphical materials.
  • Demonstrated ability to work independently as well as contribute to team collaboration and to develop strong relationships with international stakeholders (strong professional maturity).
  • Excellent organization, time-management,and multi-tasking skills, andstrong communication, problem-solving and research skills.
  • Willingness to travel domestically, with roles in community events including our research summits and yearly fundraiser.

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